Evan has had quite the adventurous few days.
Friday - we were discharged (again)! Evan was so excited to be home he wanted to stay up all night. I think he was afraid he was going to miss out on something.
Saturday - We tried out the baby wearing sling that his Canadian cousin sent. I think he loved it! I'm still learning how to tuck him in, but I do think we're both going to love using it. Since he's on a monitor, we are a little tethered and can't go too far, but it's still fun to use.
Sunday was Evan's 3 month birthday! He celebrated with a marathon snuggle with his Gma while I decorated the tree.
Monday brought us back to the pediatrician for a baseline appointment. He was starting to get noisy again, but he had an appointment with the ENT doctor the next day so we weren't too concerned. The pediatrician appointment went really well and we were back home with enough time for Andrew to go to work for the afternoon. I accomplished my goal of doing the dishes. :) Oh, and snuggling Evan of course!
When Andrew got home from work, Evan was noisier than he was during the day. We called the ENT doctor and asked if Evan could be scoped the next morning instead of just having a check up. We managed to land a 6:30 am procedure time. Around 9 pm, it was apparent that Evan was really starting to work harder to breathe. We decided to take him to the emergency room just as a precaution. We knew that we would be up all night worrying about him anyway. By the time we got to the ER, his breathing was back to quiet. After he was hooked up to the pulse ox, we saw perfect stats. Oh well, Andrew and I were still relieved we brought him in. Since he was having the procedure the next morning, we were moved to the Hematology and Oncology floor for the evening. Since Evan couldn't eat after midnight, he was super cranky. I stayed at the hospital with him but was pretty tired since Andrew and I were sleeping in 3 hour shifts all weekend. Thankfully, Evan's wonderful nurse took him out of the room for a few hours so I could get a little bit of sleep. She brought him back into the room about 5:30 am and Evan slept until the procedure at about 8 am. Woot!
The ENT doctor showed us pictures of Evan's trachea after the procedure. He said that it was a good thing Evan came in when he did as the trachea had narrowed again. It wasn't as bad as the first time, but it was getting there. We will come back in another 2 weeks to repeat the procedure (unless Evan starts to get noisy again). We stayed the night in the PICU and were discharged this morning around 9:30 am. Evan and I are hanging out while Andrew heads to work.
The scar tissue in the trachea is thin enough that the ENT doctor is hopeful that a few balloon therapy procedures will remedy the situation. If this most recent procedure doesn't last very long (the first procedure lasted for about 10 days), then we may have to look at other options. For now, we'll plan on Evan going back in 2 weeks to repeat the procedure though.
I'll have to post some pictures later, but Mr. Pants is tipping the scales at 5 pounds 5 ounces!!! He's a giant! :)
Great news about your little man! You manage to keep it all in perspective with humor, tenderness, and grace. I can't wait to see more pictures! I love you all. xox
ReplyDeleteThanks for not telling just how many hours I just sat and snuggled with Evan while the rest of you were zipping around - I did feel a little guilty! Sunday feels like it was soooo long ago... I'm going through Evan withdrawal and am not sure I can wait a few more days until I see him again. Maybe a couple of pics would help! :)
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