Sunday, September 22, 2013

Two weeks 6 days old

Written September 22, 2013 3:14pm
Andrew and I had a great day/evening celebrating with our good friends as they were married in Letchworth today. Despite the rain, it was a beautiful ceremony for two amazing people.

Evan was in good hands. I was able to stop in and spend a little bit of time with him before heading out to the wedding. He was back under the biliruben lights as his levels were a little high.

The urine culture was negative for infection so he was able to start the steroids in the afternoon. Thankfully, the steroids are mixed in with the breast milk so a new IV line was not needed. (He only has a PICC line right now.) Evan will receive the steroids every 6 hours.

When I called in at 4 pm, the nurse said that they had already weaned him based on a blood gas. Evan's glucose will need to be checked before every feed. The steroids can increase the sugars in his blood so they'll need to keep an eye on them.

We said good bye to another member of Evan's original team of doctor's today. We will certainly miss the doctors, but are looking forward to working with the new group.

After the wedding, Andrew and I both stopped in to see Evan. I timed my visit perfectly and was able to change his diaper and help weigh him. He's feeling a lot less floppy now that he's a little more filled out.

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