Evan was moved back to the high flow cannula, but it wasn't providing him with enough support. He was then quickly moved to the NIV. The doctors also ordered a CBC and culture to check for infection. It will take 3 days to grow the cultures out. In the meantime, they'll start him on antibiotics. The antibiotics can always be discontinued if the cultures come back negative.
Evan also received another dose of dexamethasone and racemic epinephrine. On rounds, the doctor ordered 4 doses of dex. It's given every 12 hours. Hopefully this will help with the stridor to improve his breathing. They also ordered a chest X-ray just to see if there's anything going on.
To help keep Evan happy, he has sweeties ordered. Sweeties is just sugar water that is put on the pacifier. Babies love them. Since Evan is my son, of course he has a sweet tooth (um gum?). His nurse kept him happy every time she checked his vitals or he got a little fussy. She also started him back up on Tylenol every 4 hours.
Unfortunately, since Evan is back on the NIV, he is back to tube feedings. Thankfully they're keeping the amount at 40 mL. Full tummy = happy, sleepy Evan.
They were working on weaning Evan off of the NIV and back to the high flow all day. Hopefully he'll be back to high flow in the morning.
Andrew and I were so very fortunate to be surrounded by friends and family today as we held an Open House for Evan. We appreciated seeing everyone. It's been hard to focus on relationships outside of Evan, so it was great to reconnect. We're looking forward to showing Evan off in real time!! Thank you to everyone that came to our house. Your love and support has been amazing these last two and a half months.
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| Yay, snuggle. |
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| Oh, hi, do you have a Sweeties for me? |
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