Whew! Evan has had a crazy few days.
After extubating himself on Monday, Evan has been keeping the doctors and nurses on their toes.
He was pretty inconsolable Monday evening and his nurse tried all the tricks she knew to keep him happy. She tried sitting him in his boppy so he could look around but that didn't keep him happy. One of the other nurses hooked up Baby Eintein on YouTube and I guess he just watched the floating bubbles for a few hours. Guess we need to invest in Baby Einstein! :) I think he had figured out he wasn't getting fed and was starting to get ticked off about it.
Evan was started back up on feeds late Tuesday afternoon. He was started out at 15 mL (which is just a snack for him), but it seemed to keep him pretty happy. The doctors didn't want him to bottle since he was still on the high flow at this point. The high flow pushes lots of air into the stomach and bottling would have just added to the air. Well, early this morning (Wednesday), Evan had enough with the tube feedings and pulled his OG tube out. The nurse asked to bottle him since he was bottling before the procedure. Thankfully, he was allowed to bottle (and he hasn't forgotten how!) Andrew was able to give him a bottle this morning before work.
Evan also made some moves on the respiratory settings. For our entire visit last night, his cannula wouldn't stay in his nose. No matter what position I had him in, the cannula just kept falling out. Thankfully, his stats were perfect so the nurse wasn't too worried. Throughout the night she managed to take him from 2 litres on the high flow cannula to room air with no support! Our baby is an awesome baby.
Andrew warned me this morning that I wasn't going to want to leave Evan today and he was right. Evan is such a little toaster that our snuggles are hard to end. He was also kind of cranky today since his feeds are still low. He was increased by 5 mL every 3 hours though with the hope that the PICC line can come out tomorrow. We're also hoping he will be ad lib (open bar dude!) tomorrow as well.
Evan is all dressed up in his turkey outfit for tomorrow. I know I haven't posted any pictures. At first it was just hard to take them since he was unrecognizable with all the tubes and wires. Today, we just forgot to bring along the good camera. Don't worry though, we will have plenty of pictures tomorrow.
Today, we talked about Evelyn, Evan's big sister. We told him how she would have been 2 years old today. Some days it feels like she was here just yesterday, other days it feels like she was never here at all. Evan will always know his sister is looking out for him and that she holds a special place in our hearts. We'll be sure to point out her star and tell him how brave she was. Happy Birthday Evelyn Grace, you would have loved your little brother.
Evan has several guardian angels watching over him but the most special one is his sister Evelyn. We love you all! xoxo
ReplyDeleteBlessings to all of you on this Thanksgiving day. Thank you for sharing your thoughts and feelings with us.I hope Evan continues to gain strength. I'm sure he enjoys the snuggles as much as you do! Evelyn surely is watching over her little brother.
ReplyDelete"Life becomes much easier when we know we are never alone."
Glad to hear he is a snuggle bunny. Happy Thanksgiving
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